NORE Research & Publications

NORE’s main focus of activities is on outcome research and methodological research in the context of arthroplasty registers.

Arthroplasty Registers are powerful instruments to assess the performance of arthroplasty procedures, and a major source for both scientific as well societal impact discussion.

NORE supports the development of Arthroplasty Registers and register documentation, and aims to enhance the comparability of reports by standardisation.

ARTHROPLASTY REGISTRIES IN EUROPE

 Belgian National Arthroplasty Register Belgian National Arthroplasty Register
www.ehealth.fgov.be
racat_200px Catalan Arthroplasty Register (RACat)
http://aquas.gencat.cat/ca/projectes/mes_projectes/qualitat_atencio_sanitaria/racat/
Report 2005-2010 (PDF document, 73 pages, 1.7Mb)
Czech Rep. Arthroplasty Register Czech Rep. Arthroplasty Register
www.ksrzis.cz
Danish Hip Arthroplasty Register Danish Hip Arthroplasty Register
www.dhr.dk
Danish Knee Arthroplasty Register Danish Knee Arthroplasty Register
www.knee.dk/
Dutch Arthroplasty Register (LROI) Dutch Arthroplasty Register (LROI)
www.lroi.nl
Finnish National Arthroplasty Register Finnish National Arthroplasty Register
www.thl.fi/far
French Arthroplasty Register French Arthroplasty Register
www.sofcot.fr
German Arthroplasty Register - Endoprothesenregister Deutschland EPRD German Arthroplasty Register
Endoprothesenregister
Deutschland EPRD
www.eprd.de
DAF_registry German Ankle Registry
www.daf-register.de
https://daf-register.memdoc.org/
Hungarian Arthroplasty Register Hungarian Arthroplasty Register
www.ortopedtarsasag.hu
National Joint Registry (NJR) for England, Wales and Northern Ireland National Joint Registry (NJR) for
England, Wales and Northern Ireland
www.njrcentre.org.uk
Norwegian Arthroplasty Register Norwegian Arthroplasty Register
http://nrlweb.ihelse.net/eng/default.htm
Portuguese National Arthroplasty Register Portuguese National Arthroplasty Register
www.rpa.spot.pt
RIPO – Register for Orthopaedic Prosthetic Implantation (Emilia-Romagna, Italy) RIPO – Register for Orthopaedic Prosthetic
Implantation
(Emilia-Romagna, Italy)
https://ripo.cineca.it
Romanian Arthroplasty Register Romanian Arthroplasty Register
www.rne.ro
The Scottish Arthroplasty Project The Scottish Arthroplasty Project
www.arthro.scot.nhs.uk
sar_200px Slovakian National Arthroplasty Register
http://sar.mfn.sk/.320.html
Slovenian Arthroplasty Register (RES) The National Arthroplasty Register of Slovenia (RES)
http://zdruzenje.ortopedov.si/
Swedish Knee Arthroplasty Register Swedish Knee Arthroplasty Register
www.myknee.se
Swedish Hip Arthroplasty Register Swedish Hip Arthroplasty Register
www.shpr.se
Swiss Arthroplasty Register Swiss Arthroplasty Register
www.siris-implant.ch
TOTBID-Registry_200px Turkish Arthroplasty Registry (regisTRy)
Website available soon
Valdoltra_Registry_200px Valdoltra Arthroplasty Register (Slovenia)
www.ob-valdoltra.si

ARTHROPLASTY REGISTRIES OUTSIDE EUROPE

American Joint Replacement Registry (US AJRR) American Joint Replacement Registry (US AJRR)
www.ajrr.net/publications-data/annual-reports
Australian Orthopaedic Association National Joint Replacement Registry Australian Orthopaedic Association National Joint Replacement Registry
https://aoanjrr.sahmri.com/
Canadian Joint Replacement Registry Canadian Joint Replacement Registry
www.cihi.ca
New Zealand Joint Registry New Zealand Joint Registry
www.cdhb.govt.nz/NJR/
 Pakistan National Joint Registry (PNJR) Pakistan National Joint Registry (PNJR)
www.arthroplasty.org.pk/
KSA_registry Saudia Arabia Arthroplasty Registry
www.soa.org.sa
www.sfda.gov.sa

Although NORE initially focuses on Registries of Hip and Knee Implants and procedures, other initiatives and established registry formats for other joints (e.g. ankle, shoulder, spine) and diseases (hip fractures, clubfeet etc) as well as regional and hospital based registries are part of the NORE network.”

NORE publications focus on outcome research and methodological research in connection with Arthroplasty Registers.

RECOMMENDED REGISTER-RELATED PUBLICATIONS

REGULATORS AND IMPLANTS REGISTRIES

Registry Data Collection and Research Guidelines, Policies and Procedures

Definition of specific guidelines, policies and procedures is work in progress by NORE. The process involves extensive discussion within the NORE network.

Results and documents will be published in this section and announced in the news section of the EFORT website.

International collaboration and definitions on methodology are essential for comparisons between national and regional reports.

NORE does not compete with National Arthroplasty Registries, but provides an additional level of evaluations. National Registers remain free to add new contents to their national data collection, but harmonisation on variable definitions is a prerequisite.

NORE’s evaluations are based on the National Arthroplasty Registry datasets, as well as on a minimal set of Variables, which ideally should be included as a minumum set in all regional and national datasets: the  EFORT-NORE minimal variables.

Two variables must be coded in a unique way: the patient and the implant. The patient must be uniquely identified to match primary and revision surgery for that patient.

An unique personal number (e.g. social security number etc) is the most secure option, but other solutions are possible.

The implant must be uniquely coded by the article and lotnumber of the implant (in the near future a UID will be available).

Examples of possible Registry Variable forms (used by the Dutch Arthroplasty Registry, LROI, www.LROI.nl):

European Commission and other governmental regulation agencies

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